Many families and caregivers find that sharing with others who have similar ongoing health conditions or developmental differences can be an encouragement in day-to-day care. Less experienced families can find comfort knowing others with common issues.
Epilepsy Partners
Sponsored by Le Bonheur
Epilepsy Partners is a partnership between Le Bonheur Children's Neuroscience Institute and families who have a child living with epilepsy. Our hope is that the families involved with this group will be able to connect and share their experiences with other families who have a child with epilepsy.
Contact: Lai Brooks at lai.brooks@lebonheur.org
Congenital Heart Disease Playgroup
Sponsored by Le Bonheur
This group is for parents and their children ages 0-5 years old who have congenital heart disease. This is a time to play, share, talk, struggle, laugh, and celebrate the journey that begins after discharge from Le Bonheur. The group meets Friday mornings 9:30-11:30 a.m. in the Family Resource Center.
Contact: 901-287-5225 or lbvolunteers@lebonheur.org
Threads of Hope: A Family Life Group
Sponsored by Le Bonheur
Threads of Hope – a Le Bonheur life group – provides support, information and counseling to families seeking to rebuild their lives after the loss of their child. Support groups for parents and siblings are offered on a regular basis so that the family members can learn to cope with their losses together. Support groups are a safe place for families to share and acknowledge the many facets of grief and begin to reframe life. Groups are held the first and third Tuesday of each month from 5:30 - 7:00 p.m. in the Education Center at 850 Poplar Ave. A light dinner is provided.
Contact: Sarita Wilson-Guffin at 901-287-6734 or sarita.wilson-guffin@mlh.org
Moms’ Support Group
Sponsored by Le Bonheur
This group is for moms whose children are patients at Le Bonheur Children's Hospital. Join us for an informal gathering to share experiences and help each other through the difficult journey of having a child in the hospital. The group meets Wednesdays from 6-7 p.m. in the Family Resource Center.
Contact: 901-287-5225 or lbvolunteers@lebonheur.org
Dads’ Support Group
Sponsored by Le Bonheur
This support group is for fathers of patients receiving care in Le Bonheur’s critical care units – Cardiovascular Intensive Care Unit, Neonatal Intensive Care Unit, Pediatric Intensive Care Unit and the Intermediate Care Unit. Hosted by the Spiritual Care team, the group provides an opportunity for dads to hang out for refreshments and discuss the challenges of being a dad with a child in critical care. The group meets Thursdays from 6 - 7 p.m. in the Family Resource Center.
Contact: 901-287-5225 or lbvolunteers@lebonheur.org
Mitochondrial Disease
The United Mitochondrial Disease Foundation's (UMDF) promotes research and education for the diagnosis, treatment and cure of mitochondrial disorders. There is a local support group.
Contact: www.UMDF.org
Hands and Voices of Tennessee
Hands and Voices supports families with children who are deaf or hard of hearing. The parent-driven, non-profit organization provides families with resources needed to improve outcomes for their children. Advocacy efforts are focused on children reaching their highest potential.
Contact: Melanie Bacon at 901-235-2021
